The Disabled Children & Young People's Register is a secure database which aims to capture information about all children and young people aged 0-25 years with special educational needs and disabilities (SEND) living within Reading Borough Council area. The information that you give us will be used anonymously to show the use of and demand for services in Reading. We will use this information to help us to plan, monitor and develop appropriate facilities and services for disabled children, young people and their families. NOTE: This register is for Reading Borough Council residents only.
The register is managed by the Family Information Service (FIS) Registering is voluntary but we would like to encourage as many of you as possible to register so that we can get as clear a picture as possible of the needs for support in Reading.
To register you must complete a simple online form which will allow you to provide us with details. We will be able to use your contact details to keep you up-to-date with developments in support and other relevant information for disabled children and young people. Note when registering a child, please register using the parent/carers name and not the child or young persons details.
This form is intended for completion by parents or carers of disabled children and young people and to register you must complete the online form which will allow you to provide us with details of your child or young person. We will be able to use your contact details to keep you up to date with developments in service provision and keep you up to date with the latest news including the DISC newsletter and other relevant information for disabled children and young people. Section 10 of the Children Act 2004 provides the legal basis for partnerships working across local authorities, health authorities and other relevant parties; for example, parent forums. These may be used for the planning and delivery of short breaks and other services.
How will the data be used?
All information held on the Children & Young People’s Disabilities Register will be treated in the strictest confidence and is protected in accordance with the Data Protection Act 1998.
Some information may be shared with authorised personnel with Reading Borough Council and other appropriate organisations for the purposes stated above. You will have full access to the information that is held about your child and have the right to remove it at any time.
Keeping the information up to date
It is important that the database is kept up to date. Every 6-12 months you will be sent a reminder to check the information held about your child is current and accurate, and will be asked to make any amendments to your information that may have taken place, e.g. change of address, school. However you are able to sign in at any time to review or update your information.
Registration on the Children and Young People’s Disabilities Register is not a requirement to obtain any services in Reading and equally does not constitute automatic entitlement to any services. When you complete the registration form you will be given the option to receive a Max Card. If you choose to receive this, please note none of your information is shared with Max Card provider.
If your card is lost or stolen then please contact us as soon as possible so we can deactivate it. There may be a small charge for cards that have to be replaced
Max Card is a national, local authority-commissioned discount initiative for looked after children and children with additional needs aged 0-19 years. The scheme enables families to visit hundreds of attractions across the UK at a free or discounted rate. www.mymaxcard.co.uk
You do not need a diagnosis to register.
"You’re disabled under the Equality Act 2010 if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities". • ‘substantial’ is more than minor or trivial, eg it takes much longer than it usually would to complete a daily task like getting dressed
• ‘long-term’ means 12 months or more, eg a breathing condition that develops as a result of a lung infection.There are special rules about recurring or fluctuating conditions, eg arthritis.
A progressive condition is one that gets worse over time. People with progressive conditions can be classed as disabled.
However, you automatically meet the disability definition under the Equality Act 2010 from the day you’re diagnosed with HIV infection, cancer or multiple sclerosis
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