PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.

 

Resources for parents including diagnostic criteria and details of local support groups. 

Resources for Medical professionals  

Resources for teachers and Schools 

Teacher training package 

Facebook group for parents/caregivers 

Facebook group for Young People age 12-17 with the condition. 

Facebook group for Adults 

Links to further Research 

Advocacy and support from the charity

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
E-mail
secretary@panspandasuk.org
Website
ww.facebook.com/panspandasuk/
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Where to go

Notes

All of Reading covered.  We provide support via our Facebook group PANS PANDAS UK.

Time / Date Details

Time of day
Morning
Afternoon
Evening
Session Information
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

 

https://www.panspandasuk.org/for-educators

Other notes

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

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Disclaimer

This information has been collected from third party providers therefore the Reading Services Guide, Reading Borough Council (RBC) and Brighter Futures for Children (BFfC) cannot accept responsibility for the accuracy of this information and recommends that parents, carers, young people, residents and professionals check with providers regarding DBS (Disclosure & Barring Service) and OFSTED registrations and CQC registrations. Information collected by Reading Service Guide; is used solely to implement and supply the Family Information Service (FIS), Special Educational Needs & Disabilities - Reading's Local Offer, Adults & Carers Support Group and Reading Youth.

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Last Updated

Last updated:

Contact the Team

Family Information Service

fis@reading.gov.uk 0118 937 3777 OPTION 2 0118 937 3777 OPTION 2

SEND Local Offer

localoffer@reading.gov.uk 0118 937 3777 OPTION 2 0118 937 3777 OPTION 2

Adult & Carers Support

CSAAdvice.Signposting@reading.gov.uk 0118 937 3747 0118 937 3747
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